Nursing

Blog spotlight: "No decisions about me without me!"

Nurse Leader Insider, January 17, 2011

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By Wendy Leebov, Ed.D.

Harvey Picker, founder of the Picker Institute, coined this phrase many years ago.  In my view, it articulates so simply and powerfully the key principle driving patient and family-centered care.

It’s exciting to see the epidemic of commitment to patient and family-centered care! The words ‘patient-centered,’ ‘engagement,’ and ‘partnership’ are everywhere, as are bulleted lists of key principles, factors, and dimensions.

Since I’m very concrete, to better understand and embrace these concepts I’ve been reflecting on personal experiences that make these concepts come alive.  In some of these experiences, these concepts were glaringly missing and the impact was profound and disturbing. In other instances, these principles were in full bloom and the impact was profound and gratifying.

About Linda: My sister was deathly ill and in a coma in an ICU for several months. My mother and I did a vigil by her bedside. It was hard to hear the caregivers talk around Linda, as if she weren’t there. To caregivers, Linda was a bedridden body with wires connected to every orifice. It hit me that caregivers didn’t talk to her much. And when they referred to her, they called her “she”, not “Linda.” It pained me that they couldn’t see the person within the patient. It was upsetting.

Read more of this blog post in the Leader’s Lounge.
 



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