Health Information Management

VA withholds cancer patient data because of privacy concerns

HIPAA Weekly Advisor, October 22, 2007

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Because of privacy concerns, the Veterans Affairs Department (VA) is withholding cancer patient data from state registries unless states sign on to a VA-issued directive, according to an October 10 article in the New York Times.

The directive has been in place since August 22, and many states, including California, which has more veterans than any other state, find the conditions in the directive impossible to meet.

Typically, patient data reported to state registries includes the name, address, age, race, and medical history of patients. This information was "used to investigate survival and other issues, like unusual cancer clusters and whether patients' experiences are different depending on their racial or economic group," according to the New York Times.

VA has stumped cancer researchers with their requirements, and meanwhile, VA patient data will be missing from, and affecting the results of cancer reports, according to the article.

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