Survey says HIPAA privacy rule is ineffective and troublesome for patients, researchers alike
HIPAA Weekly Advisor, October 8, 2007
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A recent survey by Harris Interactive suggests that both average Americans and healthcare researchers find the HIPAA privacy rule ineffective and troublesome, according to an October 2 Government Health IT article.
As part of an effort by the Institute of Medicine to consider the effects of the HIPAA privacy rule on health research, the Institute commissioned the survey, which found that nearly three out of five Americans believe that federal and state laws do not protect the privacy of their health information, according to the article.
The study also found that privacy rules slow down or stymie medical research and increase costs, and that difficulties have only increased since the rule took affect in 2003. And some researchers, such as Roberta Ness, an epidemiologist with the University of Pittsburgh, believe that the increasingly dense and complicated consent forms for human research subjects actually means their information is less protected, according to the article.
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