Health Information Management

Privacy rule cooks up pricey research, lowers participation

HIPAA Weekly Advisor, April 12, 2004

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HIPAA-compliant consent forms for research caused rates of participation in one study to slump from 96% to 38% and prompted a cost increase, reports Cardiovascular Business Week.

Cardiologists enlist heart attack patients in research projects after their treatments to study common outcomes and complications.

Researchers at the University of Michigan Cardiovascular Center say the written consent, now required by HIPAA, for their cardiovascular studies is hindering patient participation and medical information-gathering, Cardiovascular Business reports.

Additionally, HIPAA compliance hikes the price of the research, say Michigan researchers. The first year of HIPAA cost researchers an extra $14.50 per patient, and $7.50 per year thereafter.



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